i forgot to mention all the wonderful people who have helped us in our journey thus far.....
I have an AMAZING physical therapist who is with me two days a week...her name is Chris and I was introduced to her through early intervention services... She has been such a rock for me emotionally in addition to helping Andrew with his skills from the beginning.I know that he would not have accomplished anything close to to what he has without her.......
My pediatric orthopedist who was referred to me through the tireless efforts of my cousin Karen, who, from the minute we realized Andrew needed help was like my own personal telethon, calling all of her connections effortlessly until she found me the best doctor she could...thank you:) She continues to show her support everyday with inquiries and love for both my boys....
Dr. G, who had literally turned Andrew's feet around and has worked to ensure that Andrew has had the best and most efficient care possible......
Early intervention was recommended to me by both my pediatrician and orthopedist. Carol, my coordinator has been amazingly supportive in both her efforts and organization of Andrew's care.... This program is run through the sate and has been provided to us at no cost......
To my friends, who have constantly supported and inquired about Andrew's progress through phone calls, emails etc..... you have been with me from the moment i got pregnant through every obstacle and milestone we have pushed through...your love and support has been immeasurable and I cherish you always.....
To my parents, who have never been absent from babysitting duty for Jesse or even one doctor's appt..... They have rallied from the minute the twins were born and have done nothing short of support my family in every way possible...i love and appreciate you both more than you could ever imagine.....
To my husband....I have been on un-paid maternity leave for the past year and have just extended for at least another year.....He does a 10 to 12 hour day, rushes home, takes five minutes to himself and jumps in with the babies......He has been supportive both emotionally and physically, even when i know he is exhausted from his numerous responsibilities.... I knew you were the "one" early on in our relationship and i have never looked back.....Thank you for being such a tremendous father to our boys and and a wonderful husband...i love you and always look forward to our future.......
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HI.. my name is Lori and I am a friend of Donna's.. I am a ped OT and I have worked with arthrogryposis before. I strongly suggest getting an OT to help with obviously strengthening but also for adapting toys, equipment I am not sure about his difficulty. I have worked with 2 children who had involvement in their Upper extremities. But I know that the children I have had love coming to an office where there is equipment that can make the improvement that much faster.. good luck
ReplyDeleteLori, thank you so much for you input. Andrew has not been affected in his arms only his legs. however we are definitely going to discuss OT at his next meeting with the coordinator.
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